Writing

All Things Considered

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Today I cried. It was the first time I had cried in a long time. At least from what I can remember and I haven’t been remembering too well lately. Short-term memory loss tends to make life difficult in that way. Anyhow, I cried and it felt really, really great. I cried first with my sister and then with my mom.

Moseying around our room at home today,  my sister asked me “are you OK?” I responded with “yeah, sorta, well actually no.” Cue tears. And she said that’s OK. Nothing is wrong with not having it all together. No one is asking or expecting you to be totally with it. I had a similar conversation with my mom. I am so thankful for these women in my life.

After coming home from spending two weeks in the hospital in Seattle, I wasn’t sure the kinds of emotions I would experience, but after one week in I’ve mostly felt overwhelmed. After being home for one week, there is still so much to process. That is to be expected.

Two weeks ago, I had a seizure that caused me to become unconscious. After not being able to communicate with me, my parents started reaching out to my school friends via Facebook. Finally, after sending my friend Andrew directly to my dorm room finding that I did not respond to his knocks, the police were called and the door to my room was broken down.

Before being flown to Seattle Children’s Hospital from Washington State University, where I had been enjoying my first semester.  I spent a short time in the ICU at Pullman Regional Hospital.

Things were bleak. I am no doctor, but I’m pretty confident that a lot of people were unsure of if or when I would wake up, and if so, what damage would follow?

Waking up, while clearly a great step towards recovery was nonetheless very confusing. I didn’t know where I was, who my parents were, or even what had happened.

In all of the confusion, there has also been  a lot of clarity. I’ve had to rely and trust entirely on Jesus and my doctors. Jesus has shown me that my priorities are out of place and I also need to take it easier on myself. His presence has been so imminent. One of the workers in the hospital told me “I am so glad you have your faith!” I am too. I cannot even begin to imagine where I would be without my faith.

I have never felt so loved in my life. By God, friends, and complete strangers. I’ve also learned that just because God throws us curve balls in life and we don’t receive what, does not mean at all that he does not care for us. This is not the case at all.

I feel strongest in my weakest moments. People have been calling me “miracle child” and more commonly, “fighter.” And while I know this is meant to be flattering, I rarely ever consider myself either one. I call it being human. I am who I am because of hope. Side note: many people who follow my blog, read a blog post I wrote in March titled Hope is Hard. If this post interests you in any way, I’d also encourage reading my thoughts about hope as it is a topic I have brought up.

When people ask me how I’m doing and how I’m handling everything, my typical response has been along the lines of “All things considered, I am doing great!” However, internally, I’ve also recognized it’s perfectly healthy and normal to recognize that there have been large bumps in the road and recovery, especially emotional recovery, will only come with time.

Everyone, whether diagnosed with epilepsy or not faces trials and tribulations of various sizes. Sure, the events which took place two weeks ago my not occur to everyone, but everyone has a story-one that is unique!

No matter what I write about, storytelling almost always becomes incorporated. I write and share with you only because I hope that it’ll prompt you to do the same! So tell me, what’s your story?

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About, Bible, Blog Series

This is My Story

I’ve written a lot. I adore writing.  I’ve written about practically anything and everything. However, I dislike I talking about myself.  It is the one topic I avoid  at all costs. Don’t get me wrong, I’ve filled journal on top of journal filled with life. But wait, sharing this knowledge? That’s a totally different story. God has been convicting me of something lately (as He always is); God turns our messy lives into messages.  I can make Him famous by sharing my story. We all have stories. They started the day we took our very first breath.  Our lives are a book written by God. Each day is a page. Every decade a chapter.  We were created to be read. We were written to put God on the Bestseller list!

 God formed Man out of dirt from the ground and blew into his nostrils the breath of life. The Man came alive–a living soul!

Genesis 2: 7

If that’s not crazy, astonishing and thrilling, I don’t know what is.

Apparently, I am really good at putting on a poker face.  I don’t try to look like I have it all together. In fact, oftentimes I feel like screaming “I’m not strong, but He is! Every waking minute Jesus is holding me!” It is because of His strength that I am capable of being strong in my weaknesses.

But we have this treasure in jars of clay to show that this all-surpassing is from God and not from us. We are hard pressed on every side, but not crushed; perplexed, but not in despair;  persecuted, but not abandoned; struck down, but not destroyed. We always carry around in our body the death of Jesus, so that the LIFE of Jesus may also be revealed in our body.

2 Corinthians 4: 7-10

Before I begin sharing my story, I want to exhort you to share yours. Your story may not sound exciting to you, but you never know whose life you can touch without sharing it! If it means anything, your story matters to me.  If God, the one who created us to be full of purpose, shouldn’t we have faith that He is using it for something epic?

I’m going to share with you mine . I would start with day one, but I’m 6,791 days old.

Eleven years ago, at the age of seven. I had my first epileptic seizure. I conked out on the floor of the Olive Garden Restaurant on 196th St. in Lynnwood, WA. Here’s the catch: I was perfectly healthy, and nobody knew it was a seizure. We didn’t even call an ambulance.  I took a sip of water and finished eating dinner with my family. I felt fine after gracefully smashing my head on their then-brick floor. (OK, I make that sound much more exciting than it actually was). Nothing showed up on my post-fall MRI. Not even a minor concussion! Clearly, angels do exist.

My mom scheduled an emergency appointment of course. She figured the whole thing was just a fluke. It wasn’t. You may be thinking “wow, that is unfortunate.” Well, you are wrong. That day changed my life forever. OK, now you’re thinking “well duh.” It was a good life changing experience. I’m still not sure exactly how it has changed my life for the better, but everything takes some figuring out. Can I get an amen?

In the beginning I saw three different doctors. These three doctors proposed three different diagnoses:

– Most likely Vasodepressor Syncope

-Colloid on 3rd ventricle

-Small chance the episode was a seizure

I went through so many tests it’s CRAZY. EEG’s, MRI’s, blood tests, the tilt-table test, cat scans. The whole bit. I even wore a heart monitor for about one month. God was there. Holding my hand. He was upside down with me when I was strapped on that table.

My mom, being the awesome woman that as she is, finally pull out her handy dandy Taber’s Medical Dictionary from the bookshelf, performed her own research and she basically said, “Let’s take the focus off the heart and look at what is going on in her brain.”

Since my diagnosis of absence seizures has been confirmed, life has been a whirlwind. I’ve been tossed hither and thither. Since that time I’ve tried two alternative treatments to medication: 1) The Modified Atkins Diet and 2) a Vegas Nerve Stimulator. Concerning the MAD, let me just say this. After six months of eating fifteen and 10 carbohydrates per day, I obtained a whole new appreciation for bread and an extreme dislike for milk and peanuts which I practically thrived off of.

The Vegas Nerve Stimulator brings me to where I am today! Contrary to popular belief, the Vegas Nerve Stimulator is NOT brain surgery. Think of it more as a pacemaker for the brain. Well, I remember the day of my implant. I was supposed to have a history exam that day and all I could remember was that April 9th. The date of my surgery was ironically a date in history I needed to memorize. What a strange coincidence! Fast forward to today, 9/13/ 2013. Today I am recovering from the surgery  I underwent yesterday  to have the device removed. Why, you ask? I was given two choices: 1) replace the battery or 2) remove the battery. As of today I am fifty-one days seizure free! It’s these little victories we must embrace.

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VNS Implant. April 9th, 2009. This is my non-poker-face.  Seattle Children’s Hospital.

A few days ago I received my OUTPATIENT NOTE in the mail. One sentence written by my physician stuck out to me: “She has been approximately 40 days seizure free. It is not clear to us the reason for the increased efficacy…”  To doctors, these instances are just medical mysteries. I read this and thought to myself, Clearly, Jesus is at work in my life right now. I realize that while he is always at work in my life, I tend to only recognize this truth when I am having either a really bad day or an extraordinarily good day. Something about that needs to change. Whether or not I’m having a particular high or low day, I need to  start off each day saying these words:

This is the day which the Lord has made;Let us rejoice and be glad in it.

Psalm 118: 24 (NASB)

God is consistent. That being said, I shouldn’t “shelve” God. I ALWAYS need Him. I should never take Him down when I think I need Him and marginalize Him when I am under the impression that I can do things myself. So how is your storybook going to look? On the cover of my current journal, I wrote “The story of how Jesus wrecked my life and put me back together again.” He knows exactly what is wrong in our lives and puts us back together the way he sees fit! So why do we worry? We’re still human. God recognizes that. We are extremely blessed because He looks at us the way He looks at His Son. Incredible!

Your story matters.  How will you use it to change the world?

Kayla

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